Mrs Hinch opens up about son’s rare disease and reveals the ‘huge red flag’ that indicated something wasn’t right | The Sun

MRS Hinch has opened up about her son Ronnie’s ‘nightmare’ condition – Kawasaki disease.

The cleanfluencer, whose real name is Sophie Hinchliffe, shared the news about her three-year-old’s life-threatening disease after he was hospitalised earlier this week.

Alongside a photo of her little boy in hospital, the 33-year-old explained he had been there for 10 days after being diagnosed with the rare, but in some cases fatal, disease.

Now, almost a week later, Sophie has gone into further detail about her son’s condition and wants to warn other parents to look out for symptoms.

Not only this, but she also revealed the major ‘red flag’ that quickly indicated to her that something wasn’t right.

Sophie previously shared: "Ron, you are SO brave, SO strong, SO loved and just beautifully unique darling boy.

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"We have spent the past 10 days living whats felt like a real life nightmare."

Following this, yesterday, Sophie took to her Instagram stories to go into further detail, and after a fun morning of strawberry picking with her two sons at Lathcoats Farm, upon returning home, the family sat down in the living room to watch a bit of TV.

Sharing a picture of her living room, Sophie said: “Time for a little chill on the sofa now.

“Ron and Len love Diana and Roma. So do the floofs.

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“Ron’s doing so well, thank you for everyone asking.

“He seems back to his normal self which is incredible.

“Just having a few naps in the day which is needed to get his energy back.”

Following this, in her next story, Sophie then opened up about Kawasaki disease.

She continued: “So many questions in my inbox which I’m so pleased about because it must mean more and more people are learning of Kawasaki disease and the symptoms to look out for so thank you.

“Kawasaki disease can’t be prevented but children can make a full recovery if it’s diagnosed and treated promptly, but complications can develop.

“I’m just so pleased I went with my gut and phoned an ambulance, even though we had been sent home with antibiotics the day before.

“Ron’s symptoms started to come one after another whilst in the hospital and the antibiotics not working was a huge red flag.

“So we had treatment straight away once diagnosed.

“I think it was day five in hospital that they started the immunoglobulin and from there the recovery was just incredible.

“Ron has had an echocardiogram and he has no sign of heart damage which is just phenomenal.

“We have another one in two weeks time and then six weeks time just to triple check that no damage has been made to the blood vessels that supply blood to the heart (coronary arteries) which can sadly be the outcome of Kawasaki disease if it’s not treated quick enough or not treated at all.

“This is why I just want this out there! 

“Parents may then just see my story and notice symptoms and know it’s a medical emergency instead of being told to go home with antibiotics.

“If this story of Ron’s can save little hearts out there, how magic is that.”

What is Kawasaki disease?

According to the NHS, Kawasaki disease is a rare condition that mainly affects children under the age of five.

The condition, which is also known as mucocutaneous lymph node syndrome, usually lasts for 5 days or longer, and has the following symptoms:

  • a rash
  • swollen glands in the neck
  • dry, red cracked lips
  • a swollen, bumpy, red tongue (“strawberry tongue”)
  • red inside the mouth and at the back of the throat
  • swollen and red hands and feet
  • red eyes

The NHS guidelines state to "see a GP urgently, or call 111 if you can't speak to a GP, if your child has a persistent high temperature and 1 or more symptoms of Kawasaki disease."

They also stress that if your baby is less than 1 year old, it's even more important to see a GP or call 111 straight away.

While most go on to make a full recovery, if untreated, around 2-3 per cent of cases can lead to complications which can be fatal.

In Sophie’s next story post, she explained that that evening, last night, she decided to go to her friend’s hen do, despite initially cancelling after Ronnie’s health scare.

She explained: “Once the boys were settled tonight I popped out for a couple of hours for my beautiful friend’s hen do.

“I had cancelled it until Jamie reassured me that everything IS ok and the boys are safe home with him.

“I’m so pleased I went for a bit to celebrate our special hen and dance a few worries away, but being back home feels amazing.

“Jamie has been our absolute rock over the past two weeks, I don’t know how he’s done it.

“He has kept everything together, we’re so incredibly lucky to have him.

“I feel so grateful to have the boys fast asleep upstairs right now, sleeping tight and dreaming big.

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“Nothing beats home, family and friends.” 

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