The heartbroken mum of a terminally-ill baby has thanked strangers and staff for their help as time finally runs out for her boy.
Jaxon Watts was just seven-months-old when he was diagnosed with an aggressive form of cancer that is so rare there were only 16 cases known worldwide and he was the only sufferer in the UK.
Susie Watts and her partner Tom were told Jaxon had Primitive Myxoid Mesenchymal Tumor of Infancy (PMMTI), an extremely rare soft tissue tumour.
The tragic tot was unable to have surgery because the tumour surrounds main arteries so staff at Alder Hey and Great Ormand Street deemed it too risky to operate on, the Liverpool Echo reports.
Other attempts to remove the cancer have failed and the two-year-old has gone home with his parents under the palliative care of Claire House Children's Hospice.
Speaking to the Liverpool Echo, Susie, 35, said: "At the time he was diagnosed, there were only 16 cases known worldwide.
"Jaxon is the only case in the UK and they know it's a chemo-resistant tumour, so really the first line of action is to have surgery then have chemo to get rid of any remaining cells.
"If they don't get all the tumour out, it grows back more aggressively. His tumour surrounds his main arteries so they couldn't operate.
"They wanted to give chemo a go – for a while, it stopped the growth but it would make him really ill so they had to stop and have a rethink."
Jaxon and his family, who are from Chester, lived at Alder Hey hospital for nine months while a variety of combinations of chemotherapy were tried, as well as other treatments and experimental trials.
In March 2019, Jaxon started a clinical trial at Manchester Children's Hospital though the family were still linked with Alder Hey.
Susie said: "We managed to get him on a trial drug at Manchester Children's but we were still linked with Alder Hey and he made loads of improvements.
"He started crawling, he started eating for the first time – he's never been able to eat because the tumour puts pressure on his abdomen so he'd vomit violently straight afterwards.
"He has to be fed through his central line.
"On the trial drug, he was full of energy and we knew the tumour was still growing but the new drug had dramatically slowed it down.
"Then, last December, we noticed he had a swelling on his forehead and we found his cancer had spread to his skull and his spine.
"The drug had managed to prolong his life in the trial, which was amazing, but then the cancer spread and it had metastatised.
"We looked at other trials but then he came down with chicken pox and in that time, he deteriorated to the point where we couldn't start the new trial.
"We weren't 100% sure we'd be able to go on the new trial anyway.
"Now, we're looking at creating as many positive experiences as we can and also giving back to all the services that have helped him."
The family featured on an episode of BBC One's Hospital series while Jaxon was receiving treatment at Alder Hey last year.
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